This morning Maddie was awake and peeked with her eyes every
now and then, while we were at her older sister’s last soccer game of the fall
season. We are so blessed for each
second, minutes, and day with our girls. Her neurologist didn’t want us
to lose our hope but guessed that Maddie will probably die of seizures or a
complication of her seizures. It’s terrifying to know that her illness is
incurable and probably is getting worst. Each time she is back to her smiling
self we see the glimmer of hope and each time she is seizing or sleeping listlessly we get
scared of losing our sweet girl but our hope and faith is strong through God
who is in control of all. There were many times during her hospital stay that I
wanted to give up or lose faith but suddenly a sign, a phone call, a friend or a
song would play on Maddie’s favorite Pandora station. Two songs that provided
me with strength and faith while at my weakest moments were “I surrender all”
and “Just as I am” that played on her favorite Pandora Station. God is
reminding me that he is everywhere and with us.
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